A chance conversation with a colleague about my wife’s symptoms and deteriorating condition lead us to an internist with a reputation of doing sound science by exploring all the data from tests and procedures and taking time to puzzle it out. Concurrently, my wife and I scoured the literature and kept coming back to one possibility. Our suspicions were confirmed for us when the internist told us he believed Lyme disease was a strong possibility as root cause. Lab work confirmed the diagnosis of Lyme, a prescription of Doxycycline was given and, as one often does when facing severe illness and symptoms, she sought a specialist’s care.
Feeling as if we’d reached the center of a winding labyrinth, we needed to find our way back out. Finding a specialist proved to be a daunting challenge. Little did we know there was so much controversy surrounding the treatment protocols for Lyme, especially when her disease had progressed for so long without diagnosis and treatment.
The treatment journey was just as daunting as the diagnostic one, with snake oil salesmen and self-proclaimed healers offering expensive “shortcuts” to wellness, insurers denying legitimate treatment, and doctors refusing to treat or treating according to outdated protocols. Politics and controversy, temptation and despondency eventually lead to relief and resuming our life.
This is our story.